It has been awhile since I have posted here. My journey is still continuing. I have scans next week. They've scheduled a mammogram, an MRI, and a bone density scan. If the Mammo and MRI are clear, I can go to yearly scans! The bone density is for one of the cancer drugs I am on. What a cycle. I still have problems with peripheral neuropathy, and the meds do not always keep it at bay, so I may have another med change. I'll know in January. I'll deal with the neuropathy though as long as the cancer doesn't return.
Now onto Mark. I am sitting in the waiting area at the Neurologist as I write this. He is going through 4 hours of cognitive testing. The doctors need this testing so they can write a report that hopefully disability will accept. Basically, Mark sees something, and his reaction time to what he sees is slow. The part of his brain that interprets what he sees and tells the part of the brain to react to that was damaged when he had the stroke. He has difficulty reading, writing, driving in traffic, processing what he wants to say, and has a lot of difficulty in crowds. I am hopeful that this piece will help us get the disability he deserves.
He is frustrated sometimes because physically he looks great. The physical things came back with 6 months of PT. So, people think he is fine. We don't see many people socially anymore as it can be difficult for him. Too many people tires him, and he just can't function well, or he manages but needs two days to recover. So, please understand if we haven't seen you lately, or Mark seems distant when you do see him, or he doesn't talk much, it's part of what happened to him. Also understand that if he seems normal to you that he is working VERY hard at it.
It's like my cancer. After I was done with Chemo and radiation and my hair started coming in, it didn't mean I wasn't still feeling the effects or wasn't tired anymore.
So, pray for Mark and I as we continue on our journey. We are doing great and are completely blessed by awesome family and friends!
Love to you all and Merry Christmas! #findyourjoy!
