I haven't written on this blog in years. I need to though. I need to purge the feelings I am having. Things haven't changed too much. I still have neuropathy, I have joint pain and inflammation. I am going to remain on the exemestane (this drug is an estrogen blocker). My tumor and cancer was fueled by estrogen. I was originally staying on it 5 years but now it's been moved out to 10 years. I haven't had anything in mammograms that suggest cancer but the tumor had a high probability of returning. Here's the funny thing. Every time they ask me if I have side effects from the drug I say no.
The side effects are:
hot flashes- well I'm 54 and have no uterus or ovaries so YES I have hot flashes.
Joint Pain- I had joint pain before the exemestane and see a rheumatologist who says my ANA's are up (indicating something going on) but all other tests are negative so far.
It's frustrating and emotional. Is it the exemestane? Is there a different drug they can use instead?
Frankly, I'm scared. I'm scared to come off the exemestane. I'm closing in on the 10 year mark of my initial diagnosis.
I've also known two people who had breast cancer around the same time I did and they have had their cancer returned with a vengeance.
I don't know if the 10 year mark is a time to breathe easier or begin to worry.
So I breathe, I move as best I can, and I continue to find my joy. It just takes a little more reminding and purposefulness lately.
#findyourjoy