Thursday, May 19, 2016

Just Plain Tired

I am just plain tired, and its frustrating. I'm not feeling "chemo yucky" anymore now that chemo is over. However, the medication they have me on for the neuropathy and radiation makes me tired. I have radiation everyday Monday-Friday for 7 weeks. With the memorial day and 4th of July holidays, I should finish around July5th! Then I go for scans, get this blasted port out, and work on getting back to myself. I'm thankful I have the summer to do that. I want to be feeling healthy to start the school year in September.
In my planning mind, I have a long list of things I would like to accomplish everyday. Things like, bill paying, laundry, loading the dishwasher. Things that I could do in a day plus go to work. That is where the frustration lies. Most days I can only accomplish one of those easy tasks. Then I'm exhausted or the neuropathy in my hands or feet won't allow me to do the task. I know I have to be patient with myself.
I have seen a post on facebook about the how some people who are going through treatment don't look like they are, but none the less are tired and need rest. It's not laziness, its the side effects of the treatment. Granted, I look like I'm in or have been in treatment as I am just getting some peach fuzz on my head, but I'm the only one within the time frame of my radiation with no hair. The two ladies before me everyday at radiation are being treated for breast cancer but had no chemo. They are just as tired as I am. Both of those ladies are quite a bit older than I am. My doctor said they treated me aggressively as I'm considered young for breast cancer. If I were 20 years older. my treatment would have looked very different.
So my point is that everyone going through treatment is different, and no matter if they "look" like they are going through treatment or not, they may be very tired, they may need help.
I have received a lot of help through my journey. My family has been there to help clean, do laundry, and even type emails when my hands weren't working. Many of you have offered help through kind words, cards, and donating to the chemo bag project.

Speaking of the project, over 300 bags have been created. The money left after those 300 bags is outstanding, so I asked my medical and radiation nurses for suggestions. Gas cards were the biggest request. Like me, many go to radiation or chemo daily and it does add up. If the burden of paying for gas could be lifted, that would help many people. Also, they suggested some of the money go to helping pay co-pays. We are looking into how to do that. One of my nurses has a patient who needs the neulasta so her white counts stay up, but he insurance will not pay for all of it, and she has to pay $800.00 out of pocket if she wants it. There are countless other stories like this woman. So, some of the money will help that cause.
Hearing these stories makes me feel incredibly blessed. Blessed to have good health insurance, a flex card for co-pays, people to drive me to treatments, the ability to pay for gas to do that, and many people surrounding me and encouraging me.

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